The information you need. Administrative Coordinator: Anais Ruiz ajruiz@mednet.ucla.edu Clinic Frequency: Consistently every fifth Wednesday of the month. Age Range Seen: Children and Adults for general TSC care and genetics. Dr. Werner sees all ages, however adults with commercial insurance or Medicare who have mild cognitive (i.e. Tuberous Sclerosis Clinic at Childrens Mercy Hospital University of Maryland Director: Joao Garcia, MD Director: Ryan Gill, MD Program Overview. Esta clnica cuenta con un doctor o un empleado que habla espaol con fluidez. Seattle The support you want. University of Alabama Birmingham Tuberous Sclerosis Clinic Co-Director: Ana Aguilar-Bonilla, MD Cardinal Glennon Childrens Hospital, Saint Louis University School of Medicine Wake Forest Baptist Medical Center Tuberous Sclerosis Clinic Orlando Coordinator: Shannon Brophy, RN, MSN, ANP-BC Clinic Ambassador: Jocelyn Cenna,portvue@comcast.net Coordinator: Nicole Forster, MSc, CGC Virginia Commonwealth University (VCU) Health System Director: Hans Shuhaiber, MD Para mejor servir a nuestra comunidad, ofrecemos servicios gratuitos de traduccin para nuestros pacientes. Clinic Frequency: Monthly, every second Thursday. Director: Shelley Williams, MD She received her medical degree from Chicago For more information about the clinic or to schedule an appointment contact Debbie Ruckman at (773) 834-1927. WebFind the Best Neurologist near you in Loma Linda, CA . Out-of-State Medicaid Policy: Accepts all that get to them. Clinic Frequency: Monthly, first Friday. WebGet directions, reviews and information for Loma Linda Neurology in Loma Linda, CA. Age Range Seen: New patients up to age 25 years old. Clinic Frequency: Monthly Loma Linda, CA has 25 Pediatric Neurologist results with an average of 20 years of experience and a total of 106 WebDr. Co-Director: Saba Ahmad, MD Co-Director: Patricia E. McGoldrick, NP, MSN, MPA To schedule an appointment contact Kalisha Moore at (803) 434-3572. Age Range Seen: Children only under age 18 years, with some flexibility to age 21 years. Coordinator: Myra Johnson, RN, BSN If you have any questions, contact Ashley Pounders at apounders@tscalliance.org. Clinic Frequency: Daily. Miami Age Range: New patients up to age 22 years. The 5-minute survey is anonymous your answers will not be linked to any information that can identify you. In order to qualify as TSC Clinic or TSC Center of Excellence, a clinic must follow establishedTSC clinical consensus (treatment) guidelines developed by an international group of clinical experts, many of whom are members of the TSC Alliance Professional Advisory Board. Meet Us - Neurology Residency | Loma Linda University Health Clinic Frequency: Monthly, every first Wednesday morning (subject to change). To schedule an appointment with Dr. Liu call his coordinator, Crystal Ballard at (919) 660-3234. Director: Andrew House, MD Stanford Age Range Seen: Children and Adults Clinic Frequency: Every 4 to 8 weeks. Age Range: Children and Adults Chicago Director: Hope Northrup, MD Esta clnica cuenta con un doctor o un empleado que habla espaol con fluidez. For information and to schedule an appointment, call (301) 530-9744. Clinic Frequency: First Monday P.M., second Tuesday A.M., third and fifth Tuesdays P.M. every month. For clinic information contact Lisa Vala at lisa.vala@nemours.org. For Clinic Information and to schedule an appointment call (206) 987-2078. Is a volunteer, usually an adult with TSC or a parent of a child with TSC, who expresses interest in serving in this role and is a good fit with the clinic. Swedish Neuroscience Institute TSC Clinic at Institute of Neurology at St. Barnabas Co-Director: Susanne Yoon, MD Clinic Ambassador: Shalonda Alexander, Shalonda.alexander@yahoo.com, (512) 417-7329. TSC Clinic at Childrens Hospital of Michigan Co-Director: Siddarth Shah, MD Director: Josiane LaJoie, MD Le). Co-Director: Amanda Pong, MD, MSc Clinic Frequency: Second Monday every month afternoon clinic. Administrative Coordinator: Clara Samaniego Co-Director: David Viskochil, MD, PhD Referrals to any specialist in the TSCN provides an entry point to multidisciplinary care, while undifferentiated cases can be referred to Dr. House. WebDr. TSC Clinic at Neural Clinic Mexico H. Lee Moffitt Cancer Center To schedule an appointment, contact Mariana Villagran at (510) 428-3885 ext. For clinic information contact Nicole Forster at (416) 586-4800 extension 2734 and to schedule an appointment contactadultgenetics@uhn.caor Tabinda Nazeer at (416) 586-4800 extension 5454. Stephen Pautler and Patrick Luke (urology); Dr. Marco Mura (respirology); Dr. Wei Jing Loo (dermatology); Drs. If you have a compliment or complaint about a TSC Clinic there are two ways to share it with the TSC Alliance. For Clinic information and to schedule an appointment call +91 95-50876540, Mumbai, Maharashtra TSC Clinic at Connecticut Childrens Medical Center IQ is 70 or higher) or psychiatric issues and are able to complete neuropsychological testing may schedule an appointment withAndrew Liu, MD, MS. Dr. Liu has clinic weekly, Monday through Wednesday, with 5 new slots designated per month to see adults with TSC. Co-Director: Judith Adelizzi-Delaney, DNP, APRN Clinic Ambassador: Brittany Schwaigert, bschwaigert@gmail.com or (901) 238-7665 Out-of-State Medicaid Policy: Accepts any that will reimburse. Make an Appointment - Neurology | Loma Linda University We invite you to complete this survey any time after youve been to the TSC Clinic. Director: Paula Schleifer, MD Director: Steven Sparagana, MD Director: Aimee Luat, MD To schedule an appointment call (312) 227-3540. Our Locations - Neurology | Loma Linda University Health The TS Center at New York University Langone Medical Center WebNeurology Residency. For clinic information and to schedule an appointment, call (312) 996-7865. For more information about the clinic call (901) 287-4547. Age Range Seen: Children and adults Adults who need other specialty care outside of epilepsy/neurology will be referred to other subspecialties with TSC expertise such as dermatology, genetics, urology, or pulmonology. Tuberous Sclerosis Center of Excellence at Le Bonheur Childrens Hospital Houston To schedule an appointment call +91- 22-71222777 or +91 8291903140, Patparganj, Delhi Coordinator: Stacey Morgan, MSN, APRN, PNP-BC, tscoe@lebonheur.org To schedule an appointment call the Department of Pediatric Scheduling at (801) 213-3599. Director: Katherine Van Poppel, MD Advent Health Medical Group Epilepsy at Orlando The TSC Alliance is in the process of phasing in new TSC Clinic Standards. Age Range Seen: Children and Adults. For clinic information and non-urgent inquiries please call the Clinic Coordinator at (410) 448-2485. Co-Director: Sarah Weatherspoon, MD Director: Susan Koh, MD at Childrens Hospital Clinic Ambassador: Kari Ihle,kariihle77@gmail.com, (612) 281-5759 Nashville Contact Us. Director: Vikram Prakash, MD Montefiore Medical Center 88032). Dr Age Range: Children and Adults Director: John J. Bissler, MD Co-Director: Mary Kay Koenig, MD Clinic Frequency: Monthly, the last Tuesday of the month Clinic Frequency: Daily as needed Clinic Ambassador: Tara Palagetara.palage@yahoo.com Coordinator: Alison Cantarano, RN For Clinic Information and to schedule an appointment call +52 8183483704. Coordinator: Lorna Justesen, RN, BSN Clinic Frequency: Weekly every Wednesday all year round Clinic Frequency: Weekly, every Thursday afternoon. Esta clnica cuenta con un doctor o un empleado que habla espaol con fluidez. Age Range Seen: Children (0-17) and adults (18+) Director: Stacie Stapleton, MD Director: Monica P. Islam, MD Esta clnica cuenta con un doctor o un empleado que habla espaol con fluidez. Age Range Seen: Children and Adults Out-of-State Medicaid Policy: Requires one-time agreement with UCLA. *Adults will be seen for an initial diagnosis and ongoing care provided you have a primary care physician. Top Rated Loma Linda, CA Neurologists | Vitals To schedule an appointment, call (336) 716-4101. Beer Shiva Clinic Frequency: Weekly on Thursdays. Charlotte Administrative Coordinator: Chitra J. Narayanan Meet Us. Coordinator: Sonja Steinbrueck, RN What you need to know about TSC. Multi-Disciplinary Tuberous Sclerosis Program Coordinator: Eugenia Law, RN For clinic information and to schedule an appointment call (216) 286-6644. Need help Administrative Coordinator: Mary Jo Shirley Northern California TSC Clinic at Lucile Packard Childrens Hospital Orange TSC Clinic at Childrens Hospital Colorado& University of Colorado (Adult Program) Duke Medical Center Finding the right provider is important to keeping your child healthy. Clinic Frequency: Weekly. For Clinic Information and to schedule an appointment call (804) 828-2467 (Children) and (804) 828-9350 (adults). Administrative Coordinator: Mariana Villagran Coordinator: TBN To schedule an appointment at HUP, call (215) 662-4740. Age Range: Children and Adults For more information about the clinic call Brooke Henry, RN, BSN, at (434) 924-8672. TSC Clinic at Novak Center/University of Louisville TSC Clinic at Helen DeVos Childrens Hospital Age Range Seen: Children and young adults up to age 21 years old. Clinic Frequency: Monthly, pediatric multidisciplinary TSC program^meets first Friday and the adult multidisciplinary TSC program meets first Tuesday AM. Little Rock To schedule an appointment please call one of our Patient Experience Representatives at (617) 355-2711. Co-Director: Melissa Crenshaw, MD For more information about the TSC Clinic contact Claire Sartwell, RN, BSN at (713) 500-7149. Age Range Seen: Children and Adults For TSC Clinic information and to schedule an appointment call Loretta Dunn at (919) 668-4835. Director: Donald Phillips, MD, MPH Dr. Luda M. Sorin, MD | Chicago, IL | Pediatric Neurologist | US Out-of-State Medicaid Policy: Accepts Maine, New Hampshire, Rhode Island and Vermont. For more information or to schedule an appointment, call 972-3-5302687 or email Michal.LeitnerSanigou@sheba.health.gov.il. Age Range Seen: Adults 18 years and older. Coordinator: Kelly B. Nelson, RN Clinic Frequency: To be determined. Co-Director: Marisol Ibarra-Ramirez, MD For information or to schedule an appointment call (512) 628-1855. Age Range Seen: New patients under age 18 years. Age Range: Children and adults Clinic Frequency: Monday Thursday from 1 4 p.m. (schedule subject to change) To help you choose the most appropriate TSC Clinic for your needs, please use the following screening tool: The TSC Alliance would like to know about your experience at the TSC Clinic you/your child go to for care. Director: Stephen Ashwal, MD Age Range Seen: Children and young adults up to age 21 years. TSC Clinic at Prisma Health Columbia SC Age Range Seen: New patients up to age 21 years. Coordinator: Mary Sheerin, RN, BSN For clinic information and to schedule an appointment, please call (973) 322-7042. Clinic Ambassadors: Reiko Donatodonator@bellsouth.net Penn State Health/Hershey Medical Center Director: Elizabeth Thiele, MD, PhD Director: Raymond Kim, MD, PhD Hospital Universitario Jos Eleuterio Gonzlez Universidad Autnoma de Nuevo Len Age Range Seen: Children and Adults Age Range: Children and Adults up to age 60 years. WebGet directions, reviews and information for Loma Linda Neurology in Loma Linda, CA. WebLoma Linda The Tuberous Sclerosis Clinic at Loma Linda University Health Care Located at 250 E. Caroline St., Suite J West, San Bernardino, CA 92408 Director: Stephen Ashwal, MD Durham Director: Steven Wolf, MD Pittsburgh The Hospital of the University of Pennsylvania(HUP) and Childrens Hospital of Philadelphia (CHOP) Age Range: Children and Adult. Co-Director: Surya Prasadarao Rednam, MD, MS There are financial assistance programs for those living in Indiana: Dearborn county; Kentucky: Boone, Campbell and Kenton counties; and Ohio: Butler, Clermont, Hamilton and Warren counties. A letter of agreement is required prior to inpatient admissions. Clinic Frequency: Thursdays, every 2-3 weeks. Age Range Seen: Children and young adults up to age 21 years. St. Louis For more information or to schedule an appointment call (214) 559-7830 or emailTSCclinic@tsrh.org. Coordinator: Stacey Miller, LPN APNNA Arizona Pediatric Neurology & Neurogenetics Associates Clinic Frequency: Monthly, every third Wednesday. Farmington By using this site you agree to our use of cookies. Age Range Seen: Children and Adults* Director: Francis M. Filloux, MD TSC Center at the Columbia University Irving Medical Center/New York Presbyterian For more information or to schedule an appointment, please call 602) 687-8555 or email info@azpediatricneurology.com. Please read our, TSC clinical consensus (treatment) guidelines, TSC Clinic Structure and Expertise Requirements, Tuberous Sclerosis Clinic at Childrens National, The Herscot Center for Tuberous Sclerosis Complex at Massachusetts General Hospital, TSC Clinic at Childrens Hospital of Michigan, TSC Clinic at Nationwide Childrens Hospital, Michal.LeitnerSanigou@sheba.health.gov.il.

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