However, generalizability may be limited because our sample consists of patients from a particular region. The paper questionnaires were answered anonymously and empirical data were collected on the spot from September 1 to October 30, 2022. Medical resources in China are unevenly distributed among different regions, and economically developed regions have more financial, platform, and management advantages in promoting information sharing. Dental Caries Status and Caries Risk Factors in Students Ages 12-14 Years in Zhejiang, China. Fourth, it is possible for hospitals to establish a department that is responsible for regularly educating patients about the use of their private health information, handling complaints regarding privacy breaches, and providing responses. Lauren M Irvine and Deborah L Harris Review 1 June 2023 Benefits of maternally-administered infant massage for mothers of hospitalized preterm infants: a scoping review MATERNAL AND CHILD HEALTH JOURNAL impact factor The damage caused by a breach of medical data will be difficult to quantify and estimate because medical data are more valuable and highly sensitive than other types of data. Maternal and Child Health Journal Impact Score 2023 Prediction IS 2022 of Maternal and Child Health Journal is 2.28. The contribution of maternal factors to the oral microbiota of the MCN The American Journal of Maternal Child Nursing - Impact Factor This is because users are willing to take possible risks and receive explicit compensation or benefits. With the rapid development of medical information, health care data are becoming an increasingly valuable and fundamental strategic resource for countries around the world. The benefits or positive outcomes that may result from sharing personal health care data. February 2022, issue 2. JMIR Publications, JMIR Rehabilitation and Assistive Technologies, Preprints (earlier versions) of this paper are The latest impact factor of MATERNAL AND CHILD HEALTH JOURNAL and all the other SCI journals was released on 30th June 2022 by Clarivate. Ji, Guangjun International Journal of Information Management 2016 Aug;36(4):531-542 [, He Y, He Q, Li L, Wang W, Zha W, Liu Q. Information Systems Research 2004 Dec;15(4):336-355 [, Nasser A. Organizational Behavior and Human Decision Processes 1991 Dec 21;50(2):179-211 [, Aitken M, de St Jorre J, Pagliari C, Jepson R, Cunningham-Burley S. Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies. JS drafted and revised the manuscript. To further generalize this framework, future work may expand the object, content, and scope of the empirical study. Interconnecting health care data is impossible without the technical support of hospital informatization, and accordingly, different levels of informatization result in different patient experiences and levels of satisfaction. Strengthening the Reporting of Observational Studies in Epidemiology (STROBE): explanation and elaboration. Information disclosure on social networking sites: An intrinsicextrinsic motivation perspective. Health care data sharing is primarily motivated by altruistic motives, with moral motive having the strongest effect. J Community Genet 2017 Jul 5;8(3):173-181 [, Kalkman S, van Delden J, Banerjee A, Tyl B, Mostert M, van Thiel G. Patients' and public views and attitudes towards the sharing of health data for research: a narrative review of the empirical evidence. Item-scale correlation coefficient and CITC values were all greater than 0.4 and significantly different (Table 5), indicating that the measurement instrument has good reliability and can be analyzed in the next step [34,35]. Descriptive statistics, frequencies, percentages of collected data, chi-square statistics, and logistic regression were conducted using SPSS Statistics, version 24.0 (IBM Corp). The subjective possibility of sharing or planning to share personal health care data. The Article Processing Charge (APC) for publication in this open access journal is 2500 CHF (Swiss Francs). Over one-half of the sample expressed negative attitudes toward the sharing of personal health information, suggesting that individuals are becoming increasingly aware of the importance of maintaining their personal information. Previous research has found that the societal benefits of data sharing outweigh considerations of individual privacy and security [16]. If it is basically consistent, the validity is good; if it is seriously inconsistent with the hypothesis or if the commonality value of an item is lower than 0.4, the validity is poor and the item may be considered for deletion (Multimedia Appendix 3). The guidelines provide a 22-item checklist outlining standards (eg, title, abstract, introduction, methods, results, discussion, and funding) to ensure that observational studies are systematically conducted and reported (Multimedia Appendix 1). Clinical Trial Participants' Views of the Risks and Benefits of Data Sharing. Perceived effectiveness of government regulation. Front Pediatr 2021 Oct 18;9:745687-745610 [, Stunkel L, Grady C. More than the money: a review of the literature examining healthy volunteer motivations. (4) In addition, further studies should examine related issues such as the types and scope of health data that should be shared, forms of informed consent to share health data, and privacy protection measures. As this is primarily a journal devoted to population health, we are not interested in clinical case studies, in papers that are exclusively clinically focused, or in research that does not have an obvious public . Prevalence rates are higher for racial and ethnic minorities, immigrant and refugee populations, and mothers in rural locations. Further, based on the sample size requirements for exploratory factor analysis and structural equation modeling statistical analysis, it is recommended that the sample size is 5-10 times greater than the number of measurements items, and should not be less than 150, and the larger the sample, the better [29]. Impact Factor is the most common scientometric index, which is defined by the number of citations of papers in two preceding years divided by the number of papers published in those years. In addition, this study indicates that perceived risks outweigh perceived benefits, patients have a strong concern about data sharing, and are aware of privacy protection concerns. In: Proceedings of the American Marketing Association Educators Conference. Computers in Human Behavior 2016 Sep;62:516-527 [, Li H, Wu J, Gao Y, Shi Y. Development of an Instrument to Measure the Perceptions of Adopting an Information Technology Innovation. These measures indicate that the convergent validity of the measurement model was acceptable. Concern about security and privacy, and perceived control over collection and use of health information are related to withholding of health information from healthcare providers. Qiu, Xinhua Research article 1 July 2023 What are the barriers preventing the screening and management of neonatal hypoglycaemia in low-resource settings, and how can they be overcome? The personalization privacy paradox: An exploratory study of decision making process for location-aware marketing. Accordingly, perceived risk is negatively related to monetary benefit, whereas monetary benefit is positively related to willingness to share. For the Cronbach if item was deleted condition, there was a significantly smaller value than the Cronbach , value indicating that the item should not be deleted. Patients with no prior experience with personal information disclosure and tertiary hospital visits were more likely to share their health data. Although the proposed model appears to represent patients intention and determine their willingness to share personal health information, the effects of control variables were not negligible. Based on the results of the questionnaire, the mean of the willingness to share was 3.496, the SD was 0.764, and the median was 3.50. In general, tertiary hospitals should have higher policy requirements and a higher degree of information technology implementation than secondary hospitals and primary hospitals. Sharing medical data for health research: the early personal health record experience. This study was approved by the Ethics Review Committee, Shanghai Childrens Hospital, Shanghai Jiao Tong University (approval number 2021R077-E01). The complete bibliographic information, a link to the original publication on https://www.jmir.org/, as well as this copyright and license information must be included. This has been widely used in different contexts to explain the willingness to share personal data. (3) This study examined the factors influencing the willingness to share personal health data among patients in the maternal and child hospital, and further validation from the perspective of different stakeholders and application scenarios may be considered to compare the differences. May 2020, issue 5. Sci 2014 Aug 22;43(1):115-135 [, Zhong Q. This bimonthly provides peer-reviewed papers addressing the following areas of MCH practice, policy, and research: MCH epidemiology, demography, and health status . In our study, patients who have not experienced personal health information leakage are more likely to share their health information. Yan X, Some individuals with the right to control data resources engage in illegal private sales or trades, misuse of data, and other behaviors that pose a serious threat to national security and economic interests. Yu, https://doi.org/10.1016/j.chb.2018.09.034, https://doi.org/10.1016/j.chb.2014.10.059, https://doi.org/10.1016/j.chb.2016.04.023, https://doi.org/10.1016/j.ijinfomgt.2016.03.003, https://bmcmedethics.biomedcentral.com/articles/10.1186/s12910-016-0153-x, https://hal.archives-ouvertes.fr/inserm-01179381, https://europepmc.org/abstract/MED/28382417, http://jme.bmj.com/lookup/pmidlookup?view=long&pmid=31719155, https://doi.org/10.1016/j.ypmed.2007.08.012, https://www.medscimonit.com/download/index/idArt/907325, http://www.cmaj.ca/cgi/pmidlookup?view=long&pmid=18663204, http://journal12.magtechjournal.com/Jwk_dax/CN/10.16065/j.cnki.issn1002-1620.2019.06.010, https://doi.org/10.1016/j.ijmedinf.2017.12.004, https://europepmc.org/abstract/MED/34733810, https://europepmc.org/abstract/MED/21146635, https://doi.org/10.1016/j.chb.2013.07.059, https://bmcmedinformdecismak.biomedcentral.com/articles/10.1186/1472-6947-12-39, https://europepmc.org/abstract/MED/23975624, https://linkinghub.elsevier.com/retrieve/pii/S1532-0464(19)30140-6, https://europepmc.org/abstract/MED/29874542, https://publichealth.jmir.org/2023//e40814/, https://doi.org/10.1016/j.clsr.2012.03.003, https://medinform.jmir.org/2019/4/e14050/, https://doi.org/10.1016/j.cose.2015.07.002, https://doi.org/10.1016/j.tele.2017.04.013, https://doi.org/10.1111/j.1745-6606.2006.00070.x, Add this article to your Mendeley library. Decision Support Systems 2011 Apr;51(1):42-52 [, Enke N, Thessen A, Bach K, Bendix J, Seeger B, Gemeinholzer B. Maternal and Child Health Journal. Willingness to share personal health record data for care improvement and public health: a survey of experienced personal health record users. See our editorial guidelines for everything you need to know about Frontiers' peer review process. Information Systems Research 2006 Mar;17(1):61-80 [, Awad, Krishnan. This paper contributes to expand the literature on patient privacy concerns and willingness to share personal health data by integrating the Theory of Planned Behavior and the Theory of Privacy Calculus. About the Journal | International Journal of Maternal and Child Health However, fewer scholars have conducted empirical studies on the willingness to share individual health care data based on the Theory of Privacy Calculus [7]. Contemp Clin Trials 2011 May;32(3):342-352 [, Bhatia J, Breaux TD. Wang M, J Med Internet Res 2020 Apr 01;22(4):e16546 [, Mello MM, Lieou V, Goodman SN. Description: Journal of Maternal and Child Health (JMCH) is an electronic, open access peer-reviewed journal that publishes research articles on a broad range of topics related to maternal and child health. The willingness to assume the risks and harms that may result from the sharing of personal health data because of a belief that the person with whom the data are shared will take protective measures. In this study, we will investigate patients willingness to share personal health data and identify their influencing factors using a Theory of Privacy Calculus and Theory of Planned Behavior research framework. The scale items were further screened and analyzed by calculating item-scale correlation coefficient, CITC, and Cronbach if item was deleted to identify the degree of homogeneity between the items and the overall scale (Table 5). First, there are regional differences in the willingness to share personal health data. They may be reluctant to share their personal information with third parties due to a variety of reasons, including the loss of competitive advantage, unequal quality of data, or the misuse of information by others. Journal of Child Health Care: Sage Journals Third, individual private information, including date type, data purpose, and demographics (eg, names, ID numbers, correspondence, occupation, household income) should be deidentified to enhance the trust of patients in health care organizations. Medical records that guide and teach. Monetary benefit is one type of social reward, and may have a significant impact on willingness to share. Maternal and Child Health Journal - ResearchGate It aims to improve policy, service, programs, and practice in maternal and child health in low- and middle-income countries through providing a forum for publishing high-quality research for policymakers . To determine whether the correspondence between constructs and items was consistent with the research hypothesis, factor rotation was conducted according to the maximum variance method based on the criteria of characteristic roots greater than 1. It was established in 1997 and is published by Springer Science+Business Media. The Social Determinants of Health (SDOH) are the conditions in the environments . The Theory of Planned Behavior is one of the most widely used psychosocial models for predicting and explaining intentions and behaviors. Scores less than 3.50 were classified as the low willingness group, whereas scores higher than 3.50 were classified as the high willingness group. The user's view on biodiversity data sharing Investigating facts of acceptance and requirements to realize a sustainable use of research data . As shown in Table 2, female patients accounted for 78.40% (1615/2060) of the total, age range was mainly 31-40 years (972/2060, 47.18%), education was mainly undergraduate (918/2060, 44.56%), and self-assessed health status was good (1238/2060, 60.09%). The theory focuses not only on the enablers of information sharing, but also on the impediments caused by privacy leakage. If it is between 0.50 and 0.95, then it means that it is acceptable; otherwise it means that this item needs to be deleted and reanalyzed (Multimedia Appendix 4). Inf Syst Front 2017 Feb 3;19(4):753-767 [, Shibchurn J, Yan X. Journal of Risk Research 2009 Mar;12(2):259-277 [, Weed LL. Maternal and Child Health - American Public Health Association A content validity index test was conducted to verify its accuracy, completeness, readability, and formatting based on the feedback and suggestions of the experts. In this study, patients from 5 member hospitals of a maternal and child specialty alliance were invited as survey respondents. If the same upward trend persists, impact score may rise in 2023 as well. The journal encourages submissions from the research community where emphasis will be placed on the originality and the practical impact of the reported research. Public Health Genomics 2017;20(5):293-306 [, Crespo ?, del Bosque IR, de los Salmones Snchez MMG. This is because health care data are subject to more personal privacy than other general information [10]. This work was jointly sponsored by grants from National Natural Science Foundation of China (grant 72074146), Science and Technology Commission of Shanghai Municipality-Shanghai Sailing Program (grant 21YF1451600), and Shanghai Jiao Tong University School of Medicine Science and Technology Innovation Project (grant WK2326). Through this web page, researchers can check the impact factor, total citation, journal quartile, and journal aim & scope. BMC Med Inform Decis Mak 2012 May 22;12:39 [, Buckley BS, Murphy AW, MacFarlane AE. Privacy Mag 2005 Jan;3(1):26-33 [, Krahe M, Milligan E, Reilly S. Personal health information in research: Perceived risk, trustworthiness and opinions from patients attending a tertiary healthcare facility. Structural equation modeling was used to evaluate the degree of fit of the model. Next, confirmatory factor analysis was used to test convergent validity and discriminant validity. A research framework was proposed by integrating the Theory of Planned Behavior and the Theory of Privacy Calculus, as well as corresponding measurement instruments. Furthermore, a test of discriminant validity was conducted using Fornell-Larcker criteria as well as the heterotrait-to-monotrait ratio. A management recommendation was made based on the results regarding the facilitation of the continuous promotion of health care data sharing, the implementation of a coordinated regional development strategy, and the integration of health services. It is imperative that relevant departments promote the awareness and transparency of health care data, laws, and regulations; clarify ownership of data; develop advanced technologies for privacy protection; promote the use of data sharing in scientific research, clinical practice, and health management; create public confidence in data sharing; and stimulate their motivation to share data. Demographic variables assessed in this study were gender, age, educational level, hospital level, household income, place of residence, perceived health status, online medical service usage (years), and experience. J Appl Psychol 1990 Mar 21;75(1):51-59 [, Darquy S, Moutel G, Lapointe A, D'Audiffret D, Champagnat J, Guerroui S, et al. Critique and recommendations. In response to the participants suggestions, we removed the words marked as ambiguous and modified the questions to ensure they are clear and easy to understand. Health care data are usually generated by medical and health service organizations, public health institutions, and other subjects (eg, medical examination centers and insurance institutions). The differences in perceived risk may be attributed to the particular results of this latent variable within the health care context, or the fact that data sharing involves different types of information [53], or different kinds of respondents, or they may also be explained by the fact that perceived risk and willingness to share are mediated by other variables [1] that need to be investigated further in-depth in the future. The theory of planned behavior. Current Issue (April - December 2015) Indian Journal of Maternal and Child Health Volume 17, April - December 2015 Back-Translation for Cross-Cultural Research. Vol 25 The Theory of Planned Behavior has been widely used in behavioral research on new technologies and information systems. Moreover, trust has been shown to be an important factor in promoting cross-institutional information sharing and in predicting individual willingness to share [21]. Res Nurs Health 2006 Oct;29(5):489-497 [, Brislin RW. To determine participants intention to share their personal health data, we conducted a stepwise logistic regression analysis based on their demographics and health-related characteristics. The inclusion criteria for participants were as follows: (1) ability to fill out the questionnaire independently, with clear consciousness and no obvious cognitive impairment; (2) willingness to voluntarily participate in this study; and (3) age range of 18-60 years. Journal of Maternal and Child Health (JMCH) is an international peer-reviewed, open access journal in the field of maternal and child health. AN, Li Y. Journal ISSN: 1092-7875. As the online environment is uncertain and high risk, most people lack trust in the flow of data and the purpose for which they are accessed. MIS Quarterly 2006;30(1):13-28 [, Ozturk AB, Nusair K, Okumus F, Singh D. Understanding mobile hotel booking loyalty: an integration of privacy calculus theory and trust-risk framework. Information sharing is essential to the development of an integrated health care system and maximizing its benefits. Psychological Bulletin 1988 May;103(3):411-423 [, Polit DF, Beck CT. IJMA welcomes manuscripts on all areas of global maternal and child health, public health, health issues of men, women, families, and the science, practice, and policy of MCH and HIV/AIDS. IJMA provides a global forum for the rapid review and publication of papers that advance the science, policy and practice of MCH, pediatrics, child health, women's health, and further interdisciplinary knowledge of prevention, management and care of HIV/AIDS in different populations. Computer Law & Security Review 2012 Jun;28(3):308-319 [, Xu H, Teo H, Tan BCY, Agarwal R. The Role of Push-Pull Technology in Privacy Calculus: The Case of Location-Based Services. However, in China the aforesaid health care providers generally lack professional data analysis capabilities. In this study, the kurtosis ranged from 0.436 to 1.116 and the skewness ranged from 0.949 to 0.659. The questionnaire included 2 partsdemographic characteristics and multiple-item scales. The content validity index: are you sure you know what's being reported? The concerns about potential privacy breaches due to sharing of ones health data. Social reward is defined as the financial gain and spiritual fulfillment that an individual receives after performing a specific behavior. The degree of remuneration and material satisfaction that sharing personal health data can bring, such as subsidies. hPEGR: perceived effectiveness of government regulation. iPEGR: perceived effectiveness of government regulation. Public Health Journal Impact Factors, | Springer | Springer In recent years, the Chinese government has devoted considerable attention to the application and development of health care data, even though data sharing is not a government-controlled information technology in China. In another survey conducted by the China Youth Social Center, 88.8% of respondents reported that their data had been improperly processed [40]. PMID: Introduction From 1990-2010, worldwide child mortality declined by 43%, and maternal mortality declined by 40%. The impact score (IS) 2022 of MCN The American Journal of Maternal Child Nursing is 1.38, which is computed in 2023 as per its definition.MCN The American Journal of Maternal Child Nursing IS is increased by a factor of 0.58 and approximate percentage change is 72.5% when compared to preceding year 2021, which shows a rising trend. Structural equation modeling in practice: A review and recommended two-step approach. Table 8 clearly shows that moral motive (=.803, P<.001), perceived risk (=.143, P<.001), perceived benefits (=.123, P=.04), and perceived effectiveness of government regulation (=.110, P=.001) were the main factors significantly affecting patients willingness to share personal health data in the maternal and child health hospitals, and moral motive seems to be the most powerful influencing factor (Figure 2 and Table 8). 2021 (2022 update) 2.319. PPD can affect maternal and child health across the life course and predispose future generations to a myriad of developmental, psychosocial, and physical challenges. After eliminating incomplete and invalid questionnaires, a sample of 2060 valid questionnaires was finally collected. N Engl J Med 2018 Jun 07;378(23):2202-2211 [, Weitzman ER, Kaci L, Mandl KD. Similar to other studies, this study found that participants were more likely to share their information if there was a societal benefit [42-44]. JournalGuide - Maternal and Child Health Journal The paths that are unreasonable or do not reach the significant level were modified based on theoretical basis: 2 paths predicting sharing willingness from perceived effectiveness of government regulation and moral motive were removed, and 1 path predicting perceived benefit from information control was added. In the current turbulent environment in which industry regulation is still imperfect and hospitals are unable to fully ensure the security of patient information and provide adequate privacy protection, government regulations can provide safeguards for patients who are subjected to privacy violations [25]. Maternal and Child Health | Global Health Journal Search Impact Score Trend Year wise Impact Score (IS) of Maternal and Child Health Journal. Call for Papers | International Journal of Maternal and Child Health Int J MCH AIDS Articles from International Journal of Maternal and Child Health and AIDS are provided here courtesy of Global Health and Education Projects, Inc. Modern methods for business research. The Pan American Journal of Public Health (PAJPH) is an open access, peer-reviewed journal, . Shi J, Maternal and Child Health Journal Impact Factor: | Exaly Intention to disclose personal information via mobile applications: A privacy calculus perspective. As a result, the average congruency percentage was considered acceptable for use in this study. J. of the Acad. The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) statement: guidelines for reporting observational studies. As part of the effort to promote the rapid development of health care, data producers are required to provide health care data for scientific research and clinical practice. Maternal and Child Health Journal | Home - Springer As the public becomes more aware of privacy and security, their willingness to share health care data must be addressed. lThe diagonal italicized numbers are the square root of the average variance extracted for each construct. Computers in Human Behavior 2015 Mar;44:103-117 [, Hsu CL, Lin JCC. The Journal doubles its impact factor for the second consecutive year. International Journal of Maternal and Child Health and AIDS People are reluctant to provide personal information when the risks are perceived to be high. What factors increase the risk of maternal morbidity and - NICHD More longitudinal research is needed to unveil the importance of early-life microbiota on the future health of the infant. Understanding users' willingness to put their personal information on the personal cloud-based storage applications: An empirical study. Our research contributes to the development of both the theoretical model and literature in the health care domain, and further extends it by adding several relevant constructs. Please refer to the full text here. First, medical institutions should publicize the benefits and usefulness of sharing health information; improve patients perceptions of benefits; establish a subjective norm of mutual trust, respect, and mutual benefit; and encourage patients to share their health information more actively. The Journal is interested in original research in the area of maternal and child health, both within the US and from other countries. . The mean values of the 33-item scale range from 2.039 to 4.125, indicating that respondents generally showed a more positive attitude, and the SD ranges from 0.742 to 1.048, showing a reasonable distribution of the data.

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